Fibromyalgia

[RustyHicks]

Fibromyalgia is a relatively new disease that some doctors don't know about yet. It's a condition that attacks the muscles. For a year now, off and on I have been feeling sick I would take days off of work, sometimes weeks. Every muscle in my body ached, it felt like I had been hit by a mack truck, had no energy to do anything and was always exhausted. My wife told me to see the doctor, so I did. He told me I have fibromyalgia. And I have had it for awhile, just never knew it. Some of the symptons are pains in the muscles, fatigue all the time, headaches, and brain fog, a lack of concentration or mild memory loss. The other day I was talking to a friend, I could see the word in my mind but couldn't get it out. The word was spoon, If you know someone who has had these symptons for months on end, they may have fibromyalgia. I wanted to post this to bring an awareness to this disease, because some people can have it and not even know they have it. There is no cure for it and no getting over it. It's something I have to live with the rest of my life. But I am keeping a good spirit about it. This is my second marriage, just hope my wife doesn't get fed up with me I hope to help others with my story. Sorry for rambling.

[Danny]

i can get headaches and brain fog man, happens to me all the time, and ask me how to spell white and most of the time i just have a brain fart. but that raises a question, if you had a disease that you never felt impeeded on your life to much and could never be cured and wouldnt kill you, is it worth being told?

[MissJacksonCA]

Thanks for the tip and now the thourough freak out that ensued from reading up on it. I will have to now spend several months rent in order to see if I have it or if i'm just overworking and overstressing daily. It is scary though reading that. It reminded me of the day my mother finally found out she had MS. I told her for years she had it but because it doesn't say MissJacksonMD after my name she didn't believe me. Then by happenstance she got injured at work which resulted in being treated by nearly 10 different doctors and several of whom specialists one of whom told her she's got it. There's no cure but her disease only gets worse. Anywho... I'm sorry to hear about that fartpants... stay strong bud

[GRMonLI]

Fibromyalgia is a relatively new disease that some doctors don't know about yet. And I had to stop working in 1999 because of it. Its a horrible disease. If you want any informaton about it contact me I have researched a lot about it.

[kidgloves]

I feel your pain dude. Literally. I suffer from TMJ/TMD (Temporomandibular dysfunction) which has similar symptoms (fatigue, muscular aches and pains, memory loss and ultimately can lead to depression) but it is not as dibilatating as yours. Nowhere near in fact but its in the same group of conditions. The main thing is that you have been diagnosed and have some sort of explanation for what is happening to you. Unfortunately you will have to live with this for the rest of your life as you said and from now on you have to manage your life around it. Best of luck with it.

[darth los]

I'm sorry to hear that dude. If you ever want to vent there are people here who will listen. God bless you and you're family.

[GhostWolf]

Was about to say, this isn't something new. My mother was diagnosed with it some twelve years ago. I remember as a child having to help her move on bad days. Served as a human crutch for roughly five years. Had to speak for her whenever she got a migraine. And run 90% of the errands as she would be in too much pain to go out. She hasn't stopped working though. She tends to soldier through it. She has had some luck with various medications. The only one i can think of off the top of my head being Imitrex for the migraines, which are quick to act. Comes in a little pen like delivery system, something like an eppy pen.

[Debbieangel]

Rusty I feel for you too...I have MS and I have alot of the same symptoms that you do. I was diagnosised in 1985 I had gone paralyzed! Just take each day live it to its fullest do what you can with it..enjoy the heck out of it on your good days. On your bad days don't wallow in self pity, fight with everything you got in you! Don't let it beat you down! I have some other medical issues and I am doing folkart,writing a story, I am not letting my body beat the heck out and not let me do what I want in life thats for darn sure!!! FULL STEAM AHEAD!! So, my thoughts are with you Rusty, I feel for you , don't let your body stop you do the good things in life! Well I am talking reasonably...there are ALOT of things I cant do but I have learned through the years pace and limitations. I hope I have encouraged you cause I know the fight it is everyday just to get out of bed in the morning. If ya need to talk just pm me anytime,sometimes its easier to talk to others that have similar problems that have to deal with it day to day. SO here is a BIG shoulder to talk on anytime! That goes for everybody else too!!

[RustyHicks]

Hellsing, I think it is better to know what is wrong with you, then to not know what is wrong and stay in a world of confusion. MissJackson, It's not Fartpants, it's me GRMonLI, yeah looks like I may have to stop work, nothing like hitting a blank wall when you're on time clock to write spots for a radio station PLus my boss is fed up with me KidGloves, thanks for your encouragement man, I really do appreacite and you take care of yourself too. BTW I just love that Avatar of yours Darth los, thanks for you kind words dude. GhostWolf, maybe it isn't so new, but it seemed new to me. Still in the dealing stages of it though. Debbie, my dear friend, thank you so much for your kind thoughts and words of encouragement. I can see an understanding in you that sets my mind at ease and I may just take you up on your offer of PM ing you. I am keeping good spirits about this, not letting it get do and I do realize if I wallow in my own misery that depression could come up and bite me in the a**. Thank you all for your kindness. I just wanted to bring an awareness of this condition and how it might even affect someone you know.

[Cody]

smoke pot.

[coma]

smoke pot. People are talking about serious stuff and you offer spam? C'mon dude. Its always better to know and its also important to not take doctors words like Gospel. Many of them are assholes (and they rarely listen to you becasue they know it all already) and you only realize after its too late. The hardest thing is not to let it turn you into a cripple. It gets so hard sometimes that you can just stop trying. People are insensitive, Bosses look for ways to ditch you and your friends are not nearly as loyal as you thought. And , rusty, tell your boss to kiss my ass If you have a rare disease you often have absolutely noone to talk to and thats hard. Some may have issues tangentially related, but it's not the same as someone who totally relates. For me thats one of the hardest parts. I tried to continue like everything was normal but it's not. So you have to balance your adjustments to these changes without underestimating yourself. So you get a little slow, a bit unsteady, dont let the jerkoffs take advantage of that. I stand up for myself when people try to push me around. I literally take NO sh*t from anyone and that helps my esteem alot. I try to never go home wishing I said or did something. But I have profound vision issues (amongst other things) and it may be a little different/ people try to push me around and I am relatively young and Look normal so not every body knows my issues, but that doesnt matter to me. It can make one feel vunerable and Im not having that. Boy, alot of you guys have some real crap to deal with. Ugh.

[Cody]

^^ that wasnt a spam post at all, from what ive heard not really related to this disease but it helps out with the muscles, I could be wrong im sorry if Iam.

[RustyHicks]

I got what you meant Cody, no worries man. Yeah Coma I know what you mean. You may look well on the outside, no one knows sees the sickness on the inside. I'm already getting snubbed by some people who don't believe me. Oh well, life goes on.

[capncnut]

I am keeping good spirits about this, not letting it get do and I do realize if I wallow in my own misery that depression could come up and bite me in the a**. Yeah, that' something else that you don't need on top. As much as the condition wants to kick you in the teeth and keep you down, do try to remain optimistic, my friend. We don't want to add Lithium to the list of drugs that you might be taking already to combat this. Which reminds me, are you taking anything for this? What kind of tests have you undergone? I'm taking it that you are stretching regularly and I've heard that mild massage can work wonders, even though it hurts to exert yourself physically. The thing with Fibromyalgia is that there are so many triggers and as it's a relatively new thing, it's damn difficult for doctors to find out where the trouble lies. I really wish you the best with this Rusty, it's never nice to hear that a friend you share a common interest with is not 100%. If you wanna talk brother, don't hesitate to contact me - all contact information is in my profile.

[RustyHicks]

I appreciate your generous offer Capn, and if I never need to talk, I will take you up on that offer. As for medicine, I really don't want to take perscription drugs, I take herbal medication and it works well for me, so I am happy with that. I do go to massage therapy, go for walks and try to keep some exercise routin going. I have an appointment in October with a Rhuementologist( I know I spelled that wrong lol) to see what else can be done from there.